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RESEARCH &
COLLABORATIONS.

The GLM CPR is a pioneer in implementing impactful research  on cerebral palsy and childhood disability with strong global partnerships

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THE 10/90
GAP.

There is a disproportionate allocation of resources in global health research, where only 10% of funds are directed towards addressing 90% of the world's health problems. This imbalance highlights the urgent need for increased investment in studying and combating conditions such as Cerebral Palsy prevalent in low and middle-income countries.

 

The GLM CPR is working towards creating an equitable research environment for the majority world population.

ONGOING 
PROJECTS.

Keep up to date on our most recent projects

A few of the ongoing research in LMICs are listed below:

GLM CPR aims to grow and develop a global data repository, knowledge base, regionally applicable strategies and models, and a global network for the prevention and management of cerebral palsy in LMICs through research, capacity building, service delivery, and advocacy. Funded by the Cerebral Palsy Alliance and the National Health and Medical Research Council, the project was commenced in 2017. To date, our affiliated CP registers have recruited 6,292+ children with CP from LMICs, published 81+ papers, presented 30+ abstracts at national and international conferences, developed 7+ manuals/ guidelines, and supported four PhD and postdoctoral researchers.

The Bangladesh Cerebral Palsy Register is the first population-based surveillance of children with cerebral palsy in an LMIC which has been led and implemented by CSF Global (www.csf-global.org). Established in 2015, to date, the BCPR has registered 4200+ children with CP in Bangladesh, facilitated over ten studies including two randomized controlled trials, published over 30 articles in peer-reviewed journals on diverse area, and provided a platform for six early intervention and rehabilitation centres and an assistive device center.

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Argentinian Cerebral Palsy Register (RAR-PC)

The Argentine Cerebral Palsy Register (RAR-PC) is the first and ongoing epidemiological surveillance of children with CP in Argentina. Since its establishment in 2021, the RAR-PC has gradually expanded its network by including health and rehabilitation centres providing services to children with cerebral palsy in different parts of the country. Currently, the RAR-PC has registered 230+ children with CP in their database. The preliminary findings have also been presented at two international conferences.

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Malawian Cerebral Palsy Register: a cross-sectional, community-based pilot study

The Malawian Cerebral Palsy Register is a community-based survey of children with CP in Mulanje District of Malawi. This study aims to develop a platform for the national CP register in Malawi to facilitate studies on prevalence, severity, aetiology, associated impairments and risk factors for children with CP in Malawi. Since its inception in April 2023, the study has facilitated training for community health workers on the identification and referral of children with CP in their community and has generated preliminary data on risk factors of CP in the study area. As to date, the Malawian Cerebral Palsy Register has recruited 563 children. 

Global Cerebral Palsy Nutrition Program (GCPN)

Supported by CSF Global and Cerebral Palsy Alliance, Australia, the Global CP Nutrition Program aims to conduct translational research on nutritional epidemiology, nutritional assessment, and monitoring, models of cost-effective culturally appropriate nutrition intervention, and advocate for prevention and control of malnutrition among children with CP in LMICs. Commenced in 2021, to date, GCPN has supported over 250 children with CP and severe malnutrition in Bangladesh, leading several nutrition intervention projects, and generating evidence in this important area.

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COMPLETED
PROJECTS.

Highlighted projects conducted by our partners

COLLABORATION
OPPORTUNITIES.

Are you interested in a global collaboration?

We conduct collaborative and translational research on cerebral palsy in diverse areas, e.g. epidemiology, clinical features, risk factors, early detection and intervention, nutrition, social capital, quality of life, education, health literacy, participation, empowerment, and rehabilitation in low-resource settings. We would like to have the opportunity to hear about your research and welcome any ideas from the ground. If you are interested in collaborating, please feel free to contact us.

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PUBLICATIONS.

Nothing stinks like a pile of unpublished writing 
- Sylvia Plath

Power R, Muhit M, Heanoy E, Karim T, Galea C, Badawi N, Khandaker G. Depression, anxiety and stress among caregivers of adolescents with cerebral palsy in rural Bangladesh. Disability and Rehabilitation. 2019 Dec 3:1-8. PMID: 34275406

Jahan I, Karim T, Al Imam MH, Das MC, Ali KM, Muhit M, Khandaker G. Childhood Disability and Nutrition: Findings from a Population-Based Case Control Study in Rural Bangladesh. Nutrients. 2019 Nov;11(11):2728. PMID: 31717926

Karim T, Al Imam MH, Golland P, Khan AI, Hossain I, Smithers-Sheedy H, Badawi N, Muhit M, Khandaker G. Hip dysplasia among children with spastic cerebral palsy in rural Bangladesh. BMC Musculoskelet Disord. 2019 Oct 27;20(1):494. PMID: 31656186

Karim T, Jahan I, Dossetor R, Giang NTH, Van Anh NT, Dung TQ, Chau CM, Van Bang N, Badawi N, Khandaker G, Elliott E. Nutritional Status of Children with Cerebral Palsy-Findings from Prospective Hospital-Based Surveillance in Vietnam Indicate a Need for Action. Nutrients. 2019 Sep 6;11(9). pii: E2132. PMID: 31500109.

Jahan I, Muhit M, Hardianto D, Karim T, Imam MHA, Das MC, Smithers-Sheedy H, Badawi N and Khandaker G. Nutritional status of children with cerebral palsy in remote Sumba Island of Indonesia: a community-based key informants study. Disability and Rehabilitation. 2019. PMID: 31656105

Power R, Muhit M, Heanoy E, Karim T, Badawi N, Akhter R, Khandaker G. Health-related quality of life and mental health of adolescents with cerebral palsy in rural Bangladesh. PLoS One. 2019 Jun 11;14(6):e0217675. PMID: 31185015

Jahan I, Karim T, Das MC, Muhit M, Mcintyre S, Smithers-Sheedy H, Badawi N, Khandaker G. Mortality in children with cerebral palsy in rural Bangladesh: a population-based surveillance study. Dev Med Child Neurol. 2019 May 12. PMID: 31081134

Akhter R, Hassan NMM, Martin EF, Muhit M, Smithers-Sheedy H, Badawi N, Khandaker G. Caries experience and oral health-related quality of life (OHRQoL) of children and adolescents with cerebral palsy in a low-resource setting. BMC Oral Health. 2019 Jan. PMID: 30646890

Power R, Akhter R, Muhit M, Wadud S, Heanoy E, Karim T, Badawi N, Khandaker G. A quality of life questionnaire for adolescents with cerebral palsy: psychometric properties of the Bengali CPQoL-teens. Health Qual Life Outcomes. 2019 Aug 2;17(1):135. PMID: 31375110

Power R, Akhter R, Muhit M, Wadud S, Heanoy E, Karim T, Badawi N, Khandaker G. Cross-cultural validation of the Bengali version KIDSCREEN-27 quality of life questionnaire. BMC Pediatr. 2019 Jan. PMID: 30646887.

Power R, Wiley K, Muhit M, Heanoy E, Karim T, Badawi N, Khandaker G. ‘Flower of the body’: menstrual experiences and needs of young adolescent women with cerebral palsy in Bangladesh, and their mothers providing menstrual support. BMC Women's Health. 2020 Dec;20(1):1-9. PMID: 32738885

Jahan I, Al Imam MH, Karim T, Muhit M, Hardianto D, Das MC, Smithers‐Sheedy H, Badawi N, Khandaker G. Epidemiology of cerebral palsy in Sumba Island, Indonesia. Developmental Medicine & Child Neurology. 2020 Jul 20. PMID: 32686098

Karim T, Dossetor R, Huong Giang NT, Dung TQ, Son TV, Hoa NX, Tuyet NH, Van Anh NT, Chau CM, Bang NV, Badawi N. Data on cerebral palsy in Vietnam will inform clinical practice and policy in low and middle-income countries. Disability and Rehabilitation. 2020 Nov 24:1-8. PMID: 33397164

Power R, Galea C, Muhit M, Heanoy E, Karim T, Badawi N, Khandaker G. What predicts the proxy-reported health-related quality of life of adolescents with cerebral palsy in Bangladesh?. BMC Public Health. 2020 Dec 1;20(1):18. PMID: 31910840

Manlongat E, Mcintyre S, Smithers‐Sheedy H, Trivedi A, Muhit M, Badawi N, Khandaker G. Congenital anomalies in children with cerebral palsy in rural Bangladesh. Developmental Medicine & Child Neurology. 2020 Jan 6. PMID: 31903557

Al Imam MH, Jahan I, Muhit M, Das MC, Power R, Khan A, Akbar D, Badawi N, Khandaker G. Supporting Ultra Poor People with Rehabilitation and Therapy among families of children with Cerebral Palsy in rural Bangladesh (SUPPORT CP): Protocol of a randomised controlled trial. PloS one. 2021 Dec 31;16(12):e0261148. PMID: 34972100

Muhit M, Karim T, Jahan I, Al Imam MH, Das MC, Khandaker G. Epidemiology of eye diseases among children with disability in rural Bangladesh: a population‐based cohort study. Developmental Medicine & Child Neurology. 2021 Dec;64(2):209-19. PMID: 34468025

Karim T, Dossetor R, Huong Giang NT, Dung TQ, Son TV, Hoa NX, Tuyet NH, Van Anh NT, Chau CM, Bang NV, Badawi N. Data on cerebral palsy in Vietnam will inform clinical practice and policy in low and middle-income countries. Disability and Rehabilitation. 2021 Dec 9:1-8. PMID: 33397164

Jahan I, Muhit M, Hardianto D, Laryea F, Amponsah SK, Chhetri AB, Smithers-Sheedy H, McIntyre S, Badawi N, Khandaker G. Epidemiology of Malnutrition among Children with Cerebral Palsy in Low-and Middle-Income Countries: Findings from the Global LMIC CP Register. Nutrients. 2021 Nov;13(11):3676. PMID: 34835932

Karim T, Muhit M, Jahan I, Galea C, Morgan C, Smithers-Sheedy H, Badawi N, Khandaker G. Outcome of Community-Based Early Intervention and Rehabilitation for Children with Cerebral Palsy in Rural Bangladesh: A Quasi-Experimental Study. Brain sciences. 2021 Sep;11(9):1189. PMID: 34573210

Mushta SM, Jahan I, Sultana R, McIntyre S, Badahdah AM, Almasri NA, King C, Rashid H, Badawi N, Khandaker G. Burden of Malnutrition among Children and Adolescents with Cerebral Palsy in Arabic-Speaking Countries: A Systematic Review and Meta-Analysis. Nutrients. 2021 Sep;13(9):3199. PMID: 34579076

Jahan I, Muhit M, Al Imam MH, Ghose R, Chhetri AB, Badawi N, Khandaker G. Nutritional Status of Children with Cerebral Palsy in Gorkha, Nepal: Findings from the Nepal Cerebral Palsy Register. Nutrients. 2021 Aug;13(8):2537. PMID: 34444697

Al Imam MH, Jahan I, Das MC, Muhit M, Akbar D, Badawi N, Khandaker G. Situation analysis of rehabilitation services for persons with disabilities in Bangladesh: Identifying service gaps and scopes for improvement. Disability and Rehabilitation. 2021 Jun 25:1-4. PMID: 34176400

Al Imam MH, Jahan I, Muhit M, Hardianto D, Laryea F, Chhetri AB, Smithers-Sheedy H, McIntyre S, Badawi N, Khandaker G. Predictors of Rehabilitation Service Utilisation among Children with Cerebral Palsy (CP) in Low-and Middle-Income Countries (LMIC): Findings from the Global LMIC CP Register. Brain Sciences. 2021 Jul;11(7):848. PMID: 34202162

Jahan I, Muhit M, Hardianto D, Laryea F, Chhetri AB, Smithers‐Sheedy H, McIntyre S, Badawi N, Khandaker G. Epidemiology of cerebral palsy in low‐and middle‐income countries: preliminary findings from an international multi‐centre cerebral palsy register. Developmental Medicine & Child Neurology. 2021 May 24. PMID: 34031872

Al Imam MH, Jahan I, Das MC, Muhit M, Smithers-Sheedy H, McIntyre S, Badawi N, Khandaker G. Rehabilitation status of children with cerebral palsy in Bangladesh: Findings from the Bangladesh Cerebral Palsy Register. Plos one. 2021 May 3;16(5):e0250640. PMID: 33939721

Al Imam MH, Jahan I, Das MC, Muhit M, Smithers-Sheedy H, McIntyre S, Badawi N, Khandaker G. Population-based surveillance of children with cerebral palsy enables early diagnosis and intervention. Developmental medicine and child neurology. 2021 Mar 14. PMID: 33719074

Jahan I, Al Imam MH, Muhit M, Chhetri AB, Badawi N, Khandaker G. Epidemiology of cerebral palsy among children in the remote Gorkha district of Nepal: findings from the Nepal cerebral palsy register. Disabil Rehabil. 2022 Sep 14:1-10. PMID: 36102553.

Mushta SM, King C, Goldsmith S, Smithers-Sheedy H, Badahdah AM, Rashid H, Badawi N, Khandaker G, McIntyre S. Epidemiology of Cerebral Palsy among Children and Adolescents in Arabic-Speaking Countries: A Systematic Review and Meta- Analysis. Brain Sci. 2022 Jun 29;12(7):859. PMID: 35884667.

McIntyre S, Goldsmith S, Webb A, Ehlinger V, Hollung SJ, McConnell K, Arnaud C, Smithers-Sheedy H, Oskoui M, Khandaker G, Himmelmann K; Global CP Prevalence Group*. Global prevalence of cerebral palsy: A systematic analysis. Dev Med Child Neurol. 2022 Dec;64(12):1494-1506. PMID: 35952356; PMCID: PMC9804547.

Cui S, Akhter R, Yao D, Peng XY, Feghali MA, Chen W, Blackburn E, Martin EF, Khandaker G. Risk Factors for Dental Caries Experience in Children and Adolescents with Cerebral Palsy-A Scoping Review. Int J Environ Res Public Health. 2022 Jun 30;19(13):8024. PMID: 35805684.

King AR, Al Imam MH, McIntyre S, Morgan C, Khandaker G, Badawi N, Malhotra A. Early Diagnosis of Cerebral Palsy in Low- and Middle-Income Countries. Brain Sci. 2022 Apr 23;12(5):539. PMID: 35624926.

Jahan I, Sultana R,Muhit M, Akbar D, Karim T, Al Imam MH, Das MC, Smithers-Sheedy H, McIntyre S, Badawi N, Khandaker G. Nutrition Interventions for Children with Cerebral Palsy in Low- and Middle-Income Countries: A Scoping Review. Nutrients. 2022 Mar 12;14(6):1211. PMID: 35334869.

Karim T, Das MC, Muhit M, Badawi N, Khandaker G, Mohammad SS. Improving epilepsy control among children with cerebral palsy in rural Bangladesh: a prospective cohort-based study. BMJ Open. 2022 Apr 5;12(4):e052578. PMID: 35383059.

Al Imam MH, Das MC, Jahan I, Muhit M, Akbar D, Badawi N, Khandaker G. A Social Business Model of Early Intervention and Rehabilitation for People with Disability in Rural Bangladesh. Brain Sci. 2022 Feb 14;12(2):264. PMID: 35204026.

Ruiz Brunner M, Jahan I, Cuestas E, Cieri ME, Zuluaga LJE, Condinanzi ALC, Sanchez F, McIntyre S, Smithers-Sheedy H, Muhit M, Badawi N, Díaz R, Diaz A, Carranza J, Durán C, Valencia CAQ, Melaragno M, Khandaker G. Latin American Cerebral Palsy Register (LATAM-CPR): study protocol to develop a collaborative register with surveillance of children with cerebral palsy in Latin American countries. BMJ Open. 2023 (In press).

Goldsmith S, Smithers‐Sheedy H, Almasri N, Andersen GL, Diviney L, Gincota EB, Himmelmann K, Jahan I, Waight E, McIntyre S. Cerebral palsy registers around the world: A survey. Developmental Medicine & Child Neurology. 2023. PMID: 37946559

Jahan I, Islam S. Powered mobility in low-and middle-income countries: Caregivers' perspective from Bangladesh. Developmental Medicine and Child Neurology. 2023 Aug 3. PMID: 37537850.

Jahan I, Sultana R, Afroz M, Muhit M, Badawi N, Khandaker G. Dietary Intake, Feeding Pattern, and Nutritional Status of Children with Cerebral Palsy in Rural Bangladesh. Nutrients. 2023 Sep 29;15(19):4209. PMID: 37836493

Power R, Heanoy E, Das MC, Karim T, Muhit M, Badawi N, Khandaker G. The sexual and reproductive health of adolescents with cerebral palsy in rural Bangladesh: a qualitative analysis. Archives of sexual behavior. 2023 Jan 24:1-2. PMID: 36692630

Al Imam MH, Jahan I, Das MC, Bashar SMK, Khan A, Muhit M, Power R, Akbar D, Badawi N, Khandaker G. Supporting People in extreme POverty with Rehabilitation and Therapy (SUPPORT CP): A trial among families of children with cerebral palsy in Bangladesh. Dev Med Child Neurol. 2023 Jun;65(6):773-782. PMID: 36335570

Narayan A, Muhit M, Whitehall J, Hossain I, Badawi N, Khandaker G, Jahan I. Associated Impairments among Children with Cerebral Palsy in Rural Bangladesh- Findings from the Bangladesh Cerebral Palsy Register. J Clin Med. 2023 Feb 17;12(4):1597. PMID: 36836130.

Jahan I, Ruiz Brunner MLM, Muhit M, Hossain I, Cuestas E, Cieri ME, Condinanzi AL, Escobar Zuluaga LJ, Badawi N, Khandaker G. Novel weight estimation equation for children with cerebral palsy in low-resource settings: Validation in a population-based cohort. Dev Med Child Neurol. 2023 Apr;65(4):517-525. PMID: 36126148.

COMING

SOON.

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